Proud parents celebrate as ‘superhero’ boy, 5, wins battle with rare cancer

Proud parents celebrate as ‘superhero’ boy, 5, wins battle with rare cancer

January 16, 2020 By mediabest

Five-year-old Oscar Saxelby-Lee won the nation's heart with his battle against a rare cancer and now he's been told the disease has gone.

When Oscar's aggressive form of leukaemia returned last year he was given a "life or death" three month race against time to find a stem-cell match.

More than 10,000 people responded when a plea went out for potential stem cell donors, of which 5,000 people queued in the rain to be tested.

Oscar's parents, Olivia Saxelby, 26, and Jamie Lee, 23, from St John's, Worcester, couldn't believe the incredible support they got, at the time saying "we are absolutely gobsmacked with the amount of humbling support we have received since the word go".

When a match was found it was hoped that Oscar's rare T-cell acute lymphoblastic leukaemia could be cured.

Yet the couple received devastating news when they found out the cancer had returned despite Oscar's stem cell transplant last spring.


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Olivia and Jamie were heartbroken when they received the news the NHS wouldn't fund a second transplant or a potentially new cell therapy treatment.

Continuing their fight, the couple launched a fundraising drive to raise £500,000 .

The money was needed to send Oscar to Singapore for the CAR-T trial cell therapy and a second bone marrow transplant, in a bid to save his life.

Their campaign became the fastest online charity appeal ever and the money was raised in just three weeks.

"It has been heart-warming to see schools, businesses, individuals and even children giving all they can," the couple said last October after they had raised the money.


"We would like to thank you from the bottom of our hearts – Worcestershire, you are truly amazing!"

Oscar flew to Singapore over Christmas 2019 to have the therapy.

Today, Thursday January 16, Olivia and Jamie are over the moon to reveal their boy was MRD negative, meaning there is no sign of the cancer following the treatment.

They shared their delight with the world on Facebook .

"Our greatest news," they wrote.

"From 'his disease is too aggressive' and starting palliative care to 'MRD negative'! No disease detected!

"We know it's early days and anything can happen especially with his bone marrow being flat, but for now we are celebrating the news that we never thought we would hear.

"Go Oscar you amazing little boy!


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"Thank you, thank you, thank you from the bottom of our hearts to all of you for making this possible.

"We are so so so so soooooo proud!

"Although Oscar still needs another bone marrow transplant and we are a long way off full recovery to come home, we are rejoicing at this magical time in our lives!

"We are literally THE proudest parents right now!

"Keep going darling boy, this is just the beginning. #superhero #miraclesdohappen #singaporeweloveyou."

Oscar, who was initially treated at Birmingham Children's Hospital, is expected to stay in Singapore for six months.

Founder of the Grace Kelly Childhood Cancer Trust, which has been collected money for Oscar, Dr Jen Kelly said: "On behalf of the trust, I would like to thank everyone that has supported Oscar's campaign in any way.

"In particular mentioning the amazing team at Pitmaston Primary School, both the staff and parents who have gone to the most extraordinary lengths to make Oscar's huge campaign a reality.

"The Grace Kelly Childhood Cancer Trust is very proud to have been able to play a key role in Oscar's campaign and we will continue to help support Oscar and other children affected by childhood cancer wherever possible."

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